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‘The Protocol’: The Story Behind Medical Care for Transgender Kids

Key Takeaways

Deep Dive

Origins and Historical Context of Transgender Medical Treatment

- The Netherlands was among the few countries treating transgender patients - Mainstream medical establishment viewed transgender people with suspicion - Early approaches primarily treated transgender identity as a mental health issue - Some pioneering doctors began listening to patients and offering hormone treatments and surgeries

- Early psychiatric interventions proved largely ineffective, leaving patients "miserable" - By the 1980s, hormonal and surgical treatments became less fringe - Peggy Cohen-Ketnis conducted the first follow-up study on adult transgender patients - Her research found that despite ongoing challenges, most patients reported happiness after medical transition - Initial studies focused exclusively on adults, with no pediatric treatment consideration

Development of Adolescent Treatment

- Peggy began receiving referrals for older adolescents (ages 16-17) - These patients showed long-standing feelings of being in the "wrong body" - Most were functioning well mentally but experienced significant puberty-related distress - Treatment was previously unavailable before age 18

- Peggy collaborated with endocrinologist Henrietta Delamar Vandewaal - They lowered hormone treatment age from 18 to 16 - Research showed younger patients had better psychological outcomes - Earlier intervention allowed patients to more easily "pass" in society - Blocking natal puberty prevented irreversible physical changes

- Pre-puberty transgender youth engaged in "magical thinking" about body transformation - Puberty became traumatic, making patients feel their bodies were "betraying" them

The First Puberty Blocker Case: FG's Story

- 16-year-old patient FG became the first person ever given puberty blockers for gender dysphoria - FG, now in his early 50s, has carefully protected his identity

- Born female but wished to be a boy from early age - Wore dresses unconventionally (pinning them to look like knickerbockers) - Always had short hair, played primarily with boys - Participated in traditionally masculine activities like football and judo - Described as aggressive and assertive

- Ages 9-10: Believed gender identity would "sort itself out" - Ages 12-13: Became anxious as puberty began, realizing identity wouldn't change - Developed aggressive, confrontational personality as coping mechanism - At age 12, met a close female friend who was also a "tomboy" - Both resisted gender-segregated activities like gym class

- Experienced significant anxiety about approaching puberty - Wrote emotional poems expressing hopelessness about bodily changes - Left a note for parents suggesting suicidal ideation - Mother took the note seriously; an aunt suggested exploring gender identity - Parents arranged psychological consultation with endocrinologist Henrietta Delamar Vandewaal

Medical Treatment and Assessment Process

- Started blockers at age 12-13 (younger than typical 16-17 age range) - First injection was painful, administered in leg instead of recommended buttocks - Remained certain about transitioning throughout treatment - Viewed puberty blockers as life-saving intervention

- Extensive assessments with Peggy including: - IQ tests and personality tests - Rorschach test - Individual and family therapy sessions - Group therapy with peers - FG felt he was convincing enough to be an early candidate for treatment

- Stayed on puberty blockers until age 18 to avoid transitioning in front of classmates - Took a year off after high school to begin hormone treatments privately - Experienced anxiety about voice changes and being misgendered - Felt uncomfortable being visibly identified as transgender - Developed defensive strategies to deflect uncomfortable conversations - Strongly desired to be seen simply as a man, not as "different"

- Completed first year of university with "flying colors" - Underwent multiple medical operations privately - Managed significant medical challenges without drawing attention

Development of the Dutch Protocol

- Reported no gender dysphoria and easy adjustment to male role - Considered a successful early case of medical gender transition

- FG expresses nuanced views on current gender discussions - Sees some current approaches as potentially "extreme" or "fashion statement" - Feels some approaches may be disrespectful to transgender individuals who want to blend in

- Peggy developed systematic approach emphasizing careful assessment - Focus on identifying which children would benefit from medical intervention - Prevention of potential "disasters" through thorough evaluation - Use of puberty blockers to: - Prevent unwanted physical development - Give children more time to consider irreversible steps - Reduce stress in decision-making process - Creation of mental health provider teams - Close observation and assessment of individual patients

This groundbreaking case established the foundation for what would become the internationally recognized Dutch Protocol for treating gender dysphoria in adolescents.

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